Q-HER Lab Projects

Ageism in Young Adults

Ageism Through a New Lens: Understanding and Addressing Young Adults’ Experiences with Bias in Health Care

We are conducting a secondary analysis of health experiences research interviews to understand how young adults have experienced ageism in health care.

Funded by the University of Wisconsin Department of Family Medicine and Community Health and the University of Wisconsin–Madison.

Cystic Fibrosis

Trust and Equity in the Cystic Fibrosis Community: A Full-Scale Qualitative Study

We are examining dimensions of trust in 40-50 interviews with adults living with cystic fibrosis (CF) and parents and guardians of children living with CF.

Funded by the Cystic Fibrosis Project.

Diagnostic Problems and Mistakes

Field Testing the NEP-DE: A Follow-On Research Project

We are deploying a narrative elicitation protocol in two major health systems to better understand narratives about diagnostic errors, problems, and mistakes at large scale.

Funded by the Moore Foundation.

Patient-Reported Diagnostic Safety Events in Ambulatory Care Settings: A National Survey of Systemic Influences Disparities and Persisting Consequences

We are collaborating with colleagues at Yale and Johns Hopkins to field a mixed methods survey and conduct a follow-on interview study to better understand narratives’ long-term impacts of diagnostic problems and mistakes.

Funded by the Agency for Healthcare Research and Quality and the Moore Foundation.

Duchenne Muscular Dystrophy

Participants’ Experiences with Duchenne Muscular Dystrophy

We are exploring the lived experiences of individuals with Duchenne Muscular Dystrophy (DMD), focusing on transitions from pediatric to adult care, durable medical equipment, and emotional and social experiences.

Funded by the University of Wisconsin Department of Neurology.

Emotional Experiences of Care

Continuation of Consumer Assessment of Health Care Providers and Systems – VI (CAHPS VI)

We are contributing qualitative expertise to several projects led by Yale University and the RAND Corporation related to narrative item sets and, in collaboration with the Cleveland Clinic, an exploration of patients’ experiences with emotional dimensions of care.

Funded by the Agency for Health Care Quality Improvement.

Moebius Syndrome

Learning from Adults and Parents of Children Living with Moebius Syndrome: A Rigorous Qualitative Study  

We are exploring health care experiences of adults and parents of children living with Moebius syndrome, including experiences with primary care, surgery, and support services.

Funded by the Moebius Foundation.

Rare Diseases

Participants’ Experiences with Genomic Research in the Undiagnosed Diseases Program: A Qualitative Study

We are focusing on experiences adults and parents of children with rare diseases have seeking diagnosis, navigating care processes, and participating in the Undiagnosed Disease Program at UW’s Center for Human Genomics and Precision Medicine.

Funded by the Center for Human Genomics and Precision Medicine.